CVI at home
At home, the biggest wins are cheap. One thing at a time on a plain surface, the same place for everything, your name when you walk in, and time to look before you help. Below is a checklist for each part of the day, plus what to say instead of the things we all say without thinking.
Four rules for every room
- One thing at a time. Look, or listen, or reach. Pick one.
- Same place, every time. Then your child can find things by memory when seeing is hard.
- Say who you are. “Hi, it’s Dad. I’m home.”
- Wait. Count to ten in your head. Don’t fill the silence.
Every kid with CVI is different. Try one change, watch what happens, keep what works.
Meals
- Plain placemat or tray, one solid color that stands out from the plate.
- Only one or two things on it at a time, spaced apart.
- Same cup, same spot, every meal.
- TV off. Noise can make seeing harder.
- Say where things are: “Peas on the left. Your cup is by your right hand.”
Play
- Put most toys away. Leave out a few.
- Play on a plain blanket, not a patterned rug.
- Offer one toy at a time. Move it slowly to catch their eye, then hold it still and wait.
- Bright toys in one solid color may be easier to find than busy, many-colored ones.
- If your child looks, looks away, then reaches, that’s fine. It’s a strategy, not a mistake.
- Use sound and touch too: music, toys with texture.
Getting dressed
- Lay clothes out flat on a plain bed or floor, in the order they go on.
- One item at a time.
- Shoes in the same spot by the door, every day.
- Name it and place it: “Your blue shirt is on the bed, by the pillow.”
Books and reading
- Real objects first. Flat pictures can be harder than real things.
- Simple books: one picture per page, plain background.
- Good light on the page. No bright window behind the book.
- Short sessions. Stop before your child is worn out.
- Let them listen with eyes closed or looking away. Listening only is allowed.
Screens
- One thing on screen at a time. Rows of thumbnails are clutter too.
- Plain backgrounds and slow movement. Fast, busy cartoons can be hard to follow.
- A lit screen helps some kids see and wears others out. Watch for eye rubbing, turning away or meltdowns.
- Turn other noise down when the screen is on.
Bedtime
- Expect the end of the day to be hardest. Seeing takes effort, and vision tires out.
- Same routine, same order, every night.
- Pajamas, cup and favorite toy in the same places every night.
- Clear path from bed to the bathroom. Night-light in the same spot.
- Don’t ask your child to look at things now. Let vision rest. Use words and touch.
Around the house
- Tell your child before you move furniture or their things.
- Bright tape on the edges of stairs. One quiet, plain spot for breaks.
What to say instead
| Instead of | Try |
|---|---|
| “Look, it’s right there.” | “Your cup is next to your right hand.” |
| “Look at me.” | “It’s Mom. I’m sitting on your left.” |
| “You found it yesterday.” | “You’re tired today. Let’s find it together.” |
| Walking in without a word | “Hi, it’s Dad. I’m home.” |
When your child says they can’t see it, believe them.
Sources
- Perkins School for the Blind, CVI Impact of Clutter
- Perkins School for the Blind, CVI Impact of color
- Perkins School for the Blind, CVI Response Interval
- Perkins School for the Blind, CVI Sensory integration and its impact on vision
- Perkins School for the Blind, CVI Impact of Motion
- Perkins School for the Blind, The science behind visual fatigue and CVI
- Dagbjört Andrésdóttir, CVI phrases, what not to say and what is better to say instead
From cviexplained.com/at-home/. General information for families and school staff. Not medical or legal advice. CVI is different for every child.